7th April - End of Wk 1 at home

Apologises to all that this has been posted a few days late.

Well Saturday sees the end of the first complete week at home. It has been a hectic week to say the least. The beginning of the week found me feeling the cold although the temperature in the house was set at 21C. So I increased it to 22C and started wearing a hat. As the week moved on my body started to adapt and have now reached late afternoon before I start to feel cold. That's a signal for tea and bed. I am sure that not being able to do anything physical does not help. However I can see progress which is encouraging.

Eating is still a problem as I can only cope with small amounts of food and drinking is an effort. Again, difficult as this is I am eating more and beginning to actually enjoy it sometimes.(This is no reflection on Mary's cooking but due to a churning stomach and a metallic taste). I have to drink over 2.5 litres a day and when you are counting every cup it does become tedious. The tablet count has gone back up, so show me a tablet and tea at the same time and I can be guaranteed to heave.

Went to Addenbrooke's on Thursday which was a sort of good day/bad day. Good as my line came out and my blood levels were still on the up. Bad as one of my trace elements was low, so that was two hours on a drip. Yes you guessed it, another full day at Addenbrooke's and an appointment for Monday at 09:30 (yes that's correct Easter Monday)!!! Do these guys ever sleep??? However spent a lovely Easter with the family who came home to celebrate and was pleased that they could see a difference as it is not always easy to do so when you are on top of it.                                  

Had a call from a doctor from Haematology on Thursday evening to tell me that my one of my bio-chemistry levels was too high and to reduce my Tracrolimus from 1.5mg to 1.00mg. This is one of my anti rejection drugs. Well at least one less tablet to take in the short term.

So next visit to Addenbrooke's is on Easter Monday.