31st March -The beginning of the next part of the adventure

On Wednesday 28th I was released from Addenbrooke's with a host of tablets and a list of dos and donts and a reminder that although I was being released I was not well but just entering the next phase of my treatment.

Thursday was my first full day at home which I found quite stressful as I no longer had the safety of the hospital around me. I had my first small walk which quite tired me out.

Friday was an outpatient visit at Addenbrooke's. Had to be there for 9:30am, but were held up in traffic so it was a bit of a rush when we got there.On seeing the doctor and then the consultant they both were very pleased with my results thus far. Jo, my specialist nurse offered us a print out of  results,to which we said yes, foolishly thinking we simply took them and left for home - it was only 11:30.

Unfortunately she had noticed that they showed that my white count was on the high side which could indicate an infection in my line so removal of the line was suggested. After further blood tests to check this out followed by a good hour and a half wait we  trekked to Cardio Vascular to have this done.

By now I had come to terms with the idea when the second results showed a lowering of the white count which meant that if there was an infection it was under control. It also showed a shortage of potassium. So now they decided to leave the line in in case of any emergencies over the bank holiday.

Soooo......... did this mean we were free to go? Not a chance!!!!!

With line left in we trekked up and down more corridors to haematology for a new dressing on the Hickman line and a  drip containing potassium that took 2 hours. More tablets prescribed. Eventually we  left Addenbrooke's about 5:30pm. By the time I got home I was completely exhausted.

Saturday was a reasonably quiet day. The gardening team came and gave my garden a good going over so that it now looks brilliant. There was no way I was going to get anywhere near it this year.Thanks to the team. My children descended for a quick visit en route to Huntingdon to celebrate Tizzy's birthday and some friends called round in the afternoon.

Realised I hadn't done a walk today as I took the rest of the day sorting out my many bags of tablets!!!!.Mary said it was OK as I had done enough walking the day before at the hospital going from clinic to clinic and back again.

Already beginning to feel more relaxed about being away from the safety of the hospital. As next Friday is Good Friday (not only good because of Easter but also as it is Mary's birthday) my next trip to Addenbrokes will be next Thursday so will update you all then.