28th April - 51 days post transplant

They did warn us that there would be hic ups along the way and we have just discovered our first hic up!!!

After a pretty good week with areas of progress like being able to take the stairs two at a time with little effort and then, as a real plus, remembering why I had gone up stairs in the first place!!!! we got to Friday -Addenbrokes day.

We arrived at 8 O' clock for our 8:50 appointment, as they have to do bloods first, and then waited until 10:20 before going in to see the consultant. Unlike all the previous visits he was not too impressed with my blood results!!! My platelets and neutrofills had fallen quite significantly over the last 2 weeks. He said this would be for one of 3 reasons - a virus (but I haven't been unwell), one of the drugs I am taking, Septrin (so he has taken me off this for the week to see if that is it) or failure of the transplant.

The other results were OK so haemoglobin is still over 13 and whereas my kidney function was a bit dodgy last week it is fine so no need to change the tachilimus level plus all my other bio-chemical results were fine.

On the whole I feel I am getting stronger and better but still have the odd down day. This weekend has been a bit like that. I managed to sort out the tumble drier which was so full of fluff it began to smell of burning (I am sure Mary was hoping to burn the utility room and kitchen down as they badly need replacing) which I couldn't have managed a week ago. But on the other hand I have felt pretty ropey and emotionally drained.

Please keep praying- especially that the results next Friday show that it was the Septrin and all is back on track.