Back to Addenbrokes on Monday which went well. Levels were good again and the magnesium tablets seem to be working so no drip today so a nice short visit for once. I was out by 11am!!!!
Unfortunately, despite being pleased with my results, they are determined not to let me rest as I am back there on Wednesday for more blood tests and then back again on Friday for my regular clinic. Mary is uncertain that she is really spending less time at the hospital than before!!!
Wednesday was a good trip as we were out by 2pm. The results were still good.
Friday was a good trip though we did not get out till mid afternoon. Interestingly enough, despite eating more now I had lost a bit more weight so cannot wait for my appetite to return fully as it will be a good excuse to eat all those things you usually feel you have to limit. Apart from anything else none of my clothes fit even with a belt. There was just a long wait between blood tests (My Haemoglobin level was up at 13.2 the best since around 2009/2010) and seeing my consultant. Once we got in there it took no more than a few minutes as he was pleased with the results. Day 100 after transplant is a key day (Friday was day 36). By this time Acute GvHD [Graft v Host disease] should have raised it's head.and around day 100 is the time when Chronic GvHD raises its head. Though it has to be said that not all patients get either or both of these diseases. When we hit day 120 or there abouts I can start to breath a little easier. It is quite stressful waiting to see if I am going to be hit by either or both of the afore mention problems. One interesting little side effect is that my hands have gone a very dark brown. Apparently, according to Mary the back of my neck is too. The consultant didn't seem at all bothered and neither am I. If it continues to spread across my body I will have the best fake tan out!!!
Shaving seems to be a twice weekly affair at the most so Mary can no longer accuse me of being bristly as my face is as smooth as a babies bottom!!
Wednesday was a good trip as we were out by 2pm. The results were still good.
Friday was a good trip though we did not get out till mid afternoon. Interestingly enough, despite eating more now I had lost a bit more weight so cannot wait for my appetite to return fully as it will be a good excuse to eat all those things you usually feel you have to limit. Apart from anything else none of my clothes fit even with a belt. There was just a long wait between blood tests (My Haemoglobin level was up at 13.2 the best since around 2009/2010) and seeing my consultant. Once we got in there it took no more than a few minutes as he was pleased with the results. Day 100 after transplant is a key day (Friday was day 36). By this time Acute GvHD [Graft v Host disease] should have raised it's head.and around day 100 is the time when Chronic GvHD raises its head. Though it has to be said that not all patients get either or both of these diseases. When we hit day 120 or there abouts I can start to breath a little easier. It is quite stressful waiting to see if I am going to be hit by either or both of the afore mention problems. One interesting little side effect is that my hands have gone a very dark brown. Apparently, according to Mary the back of my neck is too. The consultant didn't seem at all bothered and neither am I. If it continues to spread across my body I will have the best fake tan out!!!
Shaving seems to be a twice weekly affair at the most so Mary can no longer accuse me of being bristly as my face is as smooth as a babies bottom!!
Overall things are good, it is just difficult as you always want to run before you can walk. I just need to be patient and appreciate just how fortunate I am and how good God, life, family and friends are.
Sounds that it's going really well, fantastic. Hope this week goes well. Love Caroline and Paul xx
ReplyDeleteGlad to read that you are still heading in the right direction John. We will get the low down when we see Mary bit in the meantime we send our love and best wishes to you. Love Dick and Nina xx
ReplyDeleteIt all sounds good. Great to see you both at church last week even at a distance. It was a lovely surprise. Keep strong. Prayers and love coming your way. Michelle xx
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