5th May - 58 days post transplant

Well this has been a strange week. We had a stressful time due to last week's results for although we were pretty sure that the cause of the dip in the results last week was caused by a reaction to Septrin (one of my drugs) you cannot help being concerned until you know for sure.  This was lifted to a degree when it was the consultant's "side kick" who came out and called us in (over 2 hours after our appointment was due!!). This was reinforced when we got the results.  Platelets have gone up from 79 to 80, which basically means they have stopped falling and are constant and Neutrophils have gone up from 1.49 to 1.87. He seemed to believe that Septrin is the problem and gave me an appointment for blood tests only for next week and an appointment for blood tests and clinic with the consultant the following week. He was a really pleasant, helpful doc who said that they should know for sure next week. I have to stay off Septrin for the next two weeks. Hopefully we will now see an increase in both the Neutrophils and Platelets.

This feels like a real step forward. Whilst Mary thinks the shops at the hospital are a good distraction she reckons she knows their stock levels better than they do!!!!! Spending nearly all of every Friday there is not a great way to spend the day. Even if I have to go for bloods every week and clinic every other week it means that we can leave at 06:50 and be home by 10 on blood only weeks leaving us with the majority of the day free.

Heamaglobin has gone up to 14.00 [norm is in the range of 13.00 to 17.00] which is amazing for me and generally I feel pretty good if rather tired on times. My weight has stayed the same this week which they were pleased with as it looks like I may have stopped loosing weight. This is partly due to Mary working very hard to feed me including a bowl of chocolate treats in the lounge etc. She complained to the nutritionist that this may be helping me but certainly not helping her!, apparently this is a common complaint of partners. My results showed a need to increase the tachrolimus tablets to 2 milligrams per day from 1.5 which is nothing to worry about but good to know that they are keeping a close eye on things. Also my kidney function is still OK.