Sorry for the delay in this weeks update. Friday was just bloods and I do not have the details. I guess they must be OK as no one has called me from the hospital. Weight was also done which showed a slight increase. Mary's force feeding must be doing the trick!!
Was not feeling that brilliant over the weekend; I think I might have over done it a bit; and just forgot about writing my blog. Nothing too much to report. Stomach and nausea still being a problem. Skin is now dry all over my body and flaking off. E45 being applied in copious doses. A start has been made on the reduction of Tacrolimus - the drug which suppresses my immune system. It will be interesting to see what happens as the amount of Tacrolimus reduces.
Discovered on Friday that I cannot have the drug to reduce my iron overload until I have had another bank of tests. Got to have my hearing checked, eyes checked and another heart scan. I think that only leaves the brain to be studied and they may have a problem finding that as I think it has gone on holiday considering the amount of things I seem to be forgetting right now.
Had the "bum fluff" shaved of my head over the weekend so that I don't look so daft. Hair is coming back on my chest and I now need to shave daily. All good progress.
I see the consultant this coming Friday so let's see what that brings.
Was not feeling that brilliant over the weekend; I think I might have over done it a bit; and just forgot about writing my blog. Nothing too much to report. Stomach and nausea still being a problem. Skin is now dry all over my body and flaking off. E45 being applied in copious doses. A start has been made on the reduction of Tacrolimus - the drug which suppresses my immune system. It will be interesting to see what happens as the amount of Tacrolimus reduces.
Discovered on Friday that I cannot have the drug to reduce my iron overload until I have had another bank of tests. Got to have my hearing checked, eyes checked and another heart scan. I think that only leaves the brain to be studied and they may have a problem finding that as I think it has gone on holiday considering the amount of things I seem to be forgetting right now.
Had the "bum fluff" shaved of my head over the weekend so that I don't look so daft. Hair is coming back on my chest and I now need to shave daily. All good progress.
I see the consultant this coming Friday so let's see what that brings.
Hello John,
ReplyDeleteThere are so many aspects that you are juggling with at one time, no wonder it must feel exhausting.
It was great to see you looking so well when we came around before coming over to Croatia.
Carry on keeping your chin up and the food down!
love Caroline and Paul xx