Sunday, June 3, 2012

2nd June - 86 days post transplant

Sorry all followers, I forgot to hit the publish button.

Friday was an interesting day. Weight has gone up slightly, bloods are fine as are platelets and neutrafils. Having chemo brain I forgot to pick up the results so cannot give you actual figures.
I was also given a reduction plan for Tacrolimus (immune suppression drug) which starts on the 8th June and I stop taking the drug on the 18th June. Of course there is always a catch!!! Bringing my immune system back up slowly may cause Graft versus Host Disease to kick in which I hope does not happen!!

Now this may be the reduction of one tablet, but to make up for it they have added another to the pot. This is a tablet to reduce the iron overload that I am suffering from due to the blood transfusions I have had over the last year or so.

Another little present I received to day was my appointment for a bone marrow biopsy for the 15th June. Aren't I the lucky one!!! Now where's that cloth I was biting on the last time I had it done!!

My GP now wants to see me as my yearly heart review blood test has shown that I have a high glucose level of 6.7. Apparently 7.0 puts me in the diabetic category - wonderful!! However my consultant at Addenbrookes says that it could well be caused by the Tacrolimus so it looks as if it is going to be another waiting game to see what happens when the Tacrolimus is reduced/stopped. I think my body would suffer less if it was playing rugby for Wales against England!

I did have a couple of poor days this week. It transpires that I managed to overdose by 2 tablets on my new drug that fights chest infection - result could not sleep (got maximum 2 hours sleep one night) and was feeling sick for a couple of days. Trust me to foul it up!

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