Well today, Saturday, is the first major marker after leaving hospital. The first 100 days are a very critical and I have made it through without any major problems. No GvHD and no CMV.
All I can say is that God is good!!
I now face the next 100 days when drugs are reduced and I pray that we get through this time as easily as the first 100 days. I have now started on a Tacrolimus reduction program and come of the drug mid July. Tacrolimus keeps the immune system low so as to try to avoid rejection and enable the new stem cells to become encrafted, so reducing the drug brings the immune system back on line and hopefully nothing will happen. There is the possibility of chronic GvHD, but this can also happen up to the end of the 2nd year following transplant. Getting back to 100% fitness is going to be a long haul.
Well Friday was one of those days! Had a bone marrow aspirate, this was the 4th I have had and it gets no easier, my backside is still sore. The results of this will be key to how my recovery is going so I am hoping that the results from this will be positive.
My Haemoglobin had fallen again and is now at 11.9, but my platelets were up at 102. Neutrophils were down at 1.61. Dr Crawley was not concerned and only wants to see me in three weeks time and no blood tests in the interim, so I guess this must be a positive. I had two of my drugs stopped, so am down from taking 22 tablets daily to 17.
Hair has started to grow, though I must admit that I look like a badly plucked turkey - not a pretty sight!! I have to shave daily now otherwise Mary complains.
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