13th October - 219 days post transplant

Well I am late publishing again mainly due to the fact that the children where home this weekend and we had Tizzy's baby shower, so apologises to all.

The last two weeks have been pretty rough what with sickness and diarrhoea coupled with loosing more weight, struggling to eat and drink and depression!!! However things started to improve around the 11th and the meeting with my consultant and support nurse at Addenbrookes on Friday was very positive.

According to all the blood tests and chemical analysis my blood is now 100% donor and there are no traces of the Leukemia showing in the blood. Praise the Lord!! The dryness in my mouth has improved and I now able to drink and I have started to eat. When I was weighed I was 63.4Kg, 60Kg is the critical level. I am now able to graze during the day rather than stick to fixed meal times so hopefully my weight will start to increase. 

My consultant stressed that I have had two traumatic events - the transplant and the three weeks in intensive care. He pointed out that the first has had; and will continue to have for at least 18 more months; a major impact on the chemical make up of my body and that depression is normal. This has of course been heightened by time in intensive care. Addenbrookes are setting up some meetings for me with people of a like mind to me who are a couple of years further down the road. They will be able to share their experiences and reassure me. If needed they will set up a meeting for me with one of their clinical physcologists. I cannot fault the care the hospital are providing.

The tablets that I am taking to reduce my iron overload seem to be working well. The level should be under 1000 and prior to starting it was around 6700. Now it is down to 2700.

GvHD seems to be getting under control and skin flaking has improved.