Well I guess we are now at the end of the runway!!!
Wednesday brought good news - Bedfordshire PCT have at long last agreed to fund the use of Exjade to remove my iron overload. It would have been good if they had agreed this back in October as we could possibly have got rid of the excess iron prior to the transplant, but better late than never. Was it Addenbrooke's persistence or my MP joining the fray - I guess we will never know!
Thursday brought another raft of tests - lung function, x-ray and ECG - all ok.
Every bit of me has now been checked.
So in to Addenbrooke's and away we go on Monday!!!
I'll try and blog on a regular basis from here on in, but it is going to depend on how it all goes.
Glad that Bedfordshire PCT have finally agreed. Hope all goes well for you this week. Will be praying for you.
ReplyDeleteCaroline C