21st July - 135 days post transplant

Well today was just bloods, so not much to relate.
Feeling a bit off colour.
Blood pressure was  a bit on the low side.
As from today I will only post on a fortnightly basis after I have been to Addenbrookes.

14th July - 128 days post transplant

I forgot to post this over the weekend, so I hope no one is panicking that something may have happened to me. This weekend was the first that was nearly like a normal weekend. Got out and about a bit with Mary and managed two meals out at pubs. Time was chosen so that they were on the empty side.

There was no visit to Addenbrookes this Friday. Should have mentioned that last week!!! The situation is that I have bloods one week, then a free week, then the consultant the following week, free week and then bloods. This being the case I will now move the blog report to every fortnight after a visit to Addenbrookes.

Nausea has improved immensely as has the metallic taste in my mouth. It looks as if it will take a least a couple of months for my finger nails to sort themselves out and boy isn't that going to be a bundle of fun. They are painful at the moment and if you catch them on something .............!

My hair has definitely stopped falling out and is now in to the regrowing phase. The hair on my head, however, is taking its time over this!!!! Hair on other parts of my body id re-appearing much quicker.

I visit Addenbrookes this coming Friday for bloods and will provide an update after that.

7th July - 121 days post transplant

Well we are now a third of a year down the road since the Bone Marrow Transplant without any signs of rejection and getting stronger week on week. This week we had the results of my first bone marrow aspirate (BMA) I had a few weeks ago and it showed no signs of the disease. This is great news, though it does not mean that I am cured as we do have to wait for the results of two more BMAs, one in about 75 days time - the end of the second 100 days and another one a year down the road. We were seen by one of the senior haematologist and he was very positive and told me that I could now start to ease myself into leading a normal life.

It is highly likely that in about two to three weeks time I will start to have my childhood vaccinations again. This does underline that I have started a new life!!!

Stomach is feeling pretty good now. The problem I face at the moment is nausea when I look at certain foods. This could be caused my smell? I still have a sweet sickly, metallic taste in my mouth which increases as the day goes on and that does not help eating as the taste of the food can be awful.

My finger nails are giving me problems as they are painful. This is caused by the new nails growing behind the ones damaged by chemo.

Lost a little weight but this is likely to be due to the fact that I am doing more.

Fatigue is still causing a hassle, but it is not as bad as it was. Just need a rest in the afternoon, no longer in the morning.